Minneapolis: Here We Come

We have been very grateful when it comes to the level of care Emily has received. Not many people are afforded the luxury of seeing the world renown specialists that we have in the past 3 years. We are about to add another one to the list.

The University of Minnesota Masonic Childrens Hospital has been eager to see Emily for some time now. Shortly after our initial call to them they reviewed her medical records and stated their desire to have her in for a consultation. It is odd to have specialists in their field so interested in your daughters case. This initial call was over a year ago when we were researching options to alleviate her pancreatitis, should it worsen.

Now that we have exhausted every other option, and seen other specialists in childhood pancreatitis, we were ready to choose a facility for her total pancreatectomy and islet auto transplant consultation (TP-IAT) While our initial research and call to Minnesota put them top of our list, we wanted to get feedback from the top specialists on which facility was best for Emily. Consideration was given to Cincinnati Childrens (mainly due to proximity to our home) and Pittsburgh Childrens (due to their own world renown childhood pancreas group) We quickly ruled out Cincinnati as they haven’t performed as many procedures as the other facilities. We were very interested in Pittsburgh as an option. We had a consultation with Dr. Husain there last year and he has stayed up with Emily’s case through constant contact with Dr. Gupta. Plus we fell in love with the city. Ok it was really just Primanti Brothers we fell in love with. So Liz called Dr. Husain to ask about coming for a consultation. He stated that while they were building a great program in Pittsburgh, he recommended we go to Minnesota. When a literal world recognized leader in a highly specialized field tells you to go to a different hospital, and they were already your front-runner, that is where you go.

If you know anything about specialists you know they aren’t the easiest group to get appointments with. When we call them specialists, we truly mean it. Here is an excerpt from their website;

In 1977, University of Minnesota Physicians performed the first TP-IAT in the world. Since then, our surgeons have performed more than 600 procedures, with over 100 of them on children ages 3 to 18. Children with severe pain from acute recurrent or chronic pancreatitis often experience resolution of pain and improved quality of life after TP-IAT.

We were very thankful doctors of this caliber not only agreed to see Emily but could get her in so fast.  On June 6, 7, 8 & 9 we will be on site in Minneapolis for our consultation. The exhaustive process will even include a consultation with their metabolic group. Due to her unknown metabolic condition they want to have another set of eyes take a look at her medical history. They are leaving no stone un-turned.

After the initial consultation is complete they will present Emily’s case to a peer review board to ensure this procedure is right for her. With such a young patient possibly going through something as serious as an organ transplant they won’t do the surgery unless they are certain she is the right candidate. This consultation is just the initial step in a long process. It is hard to truly express how we feel at this stage. Maybe we will elaborate on all of our feelings during another post. This has been looming over our heads for a long time now and the time is finally here.

Minneapolis here we come.


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Trackbacks & Pings

  • Road Tripping Theisen Style - Emme Jo :

    […] latest specialist visit is to the University of Minnesota Masonic Children’s Hospital for a week long consultation. So while it may seem our road trips aren’t of the ideal variety, we try to turn them into a […]

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  • What #EmmeSmiles is All About - Emme Jo :

    […] get asked all the time how people can help our family. Before the pancreatectamy we didn’t have much we felt comfortable asking for help with. So in an effort to make it […]

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