Latest Updates

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Emme’s Cranky Panky

So much has happened since we last posted something to the site. Our hope was to keep this more up...

Limited-Edition Neon Lokai

A Wish Granted – Emily is now a “Wish Kid”

Our family had been dealing with another rough patch recently. Emily was struggling and had to be admitted for the...

Minneapolis: Here We Come

We have been very grateful when it comes to the level of care Emily has received. Not many people are afforded...

Pancreas Transplant Consultation

Things are moving quickly. After an MRCP during her last inpatient stay showed pancreatic atrophy, the timeline to start the...